Each crisis interferes with a person’s life.
每一次疼痛危机都会干扰一个人的生活。
If the pain is severe, it can prevent a person from going to work or school.
如果疼痛严重,可能会影响人们上班或上学。
Sufferers cannot do things that require lots of physical energy.
患者无法做需要大量体能的事情。
Della enjoys playing sports.
德拉喜欢做体育运动。
But he has learned to stop when he feels tired. He has also learned to enjoy other things.
但是他已经学会了累的时候就停下,也学会了享受其他的事情。
“Instead of excelling physically outdoors, I stay in and think creatively. I write music and come up with program ideas. I use my mind [instead of] my body.”
“与其]在户外发挥体能优势,不如呆在室内进行创造性思考。我写音乐,想节目创意。我进行脑力劳动而不是体力工作"。
There is no cure for Sickle Cell Anemia. But it can be prevented.
镰状细胞贫血无法治愈,但它是可以预防的。
You see, Sickle Cell Anemia is a hereditary disease. It is in the genes that parents pass to their children. This disease cannot be passed in any other way.
你看,镰状细胞贫血是一种遗传性疾病。它存在于父母传递给孩子的基因中。这种疾病无法通过任何其他方式传播。
Della has Sickle Cell Anemia. So he knows that he will pass the gene to his children.
德拉患有镰状细胞贫血症,所以他知道他会把这种基因传给他的孩子。
But a child must get a Sickle Cell gene from both parents in order to have the disease.
但是,一个孩子必须从父母双方那里获得镰状细胞基因才能患上这种疾病。
This is why Della asks a girl if she has been tested!
这就是为什么德拉问一个女孩她是否接受过测试!
“Now that I am older I understand the importance of people’s blood types.
现在我年纪大了,我理解了人们血型的重要性。
When I enter into a new relationship, she must be completely free from Sickle Cell Anemia. This is to prevent the cycle from happening again.”
如果我谈恋爱的话,她必须完全没有镰状细胞贫血症。这是为了防止这种循环再次发生。
Not everyone with the Sickle Cell Anemia gene will have the disease. It is possible to be a carrier of the gene.
不是每个带有镰状细胞贫血基因的人都会患上这种疾病。他有可能是该基因的携带者。
A carrier has the disease from just one of his parents.
携带者只有一个父母患有这种疾病。
A carrier will not suffer from the disease.
携带者本人不会患上这种疾病。
But he could still pass it on to his children.
但是他仍然可以把这种基因传给他的孩子们。
By taking a simple blood test, a person can find out if they carry the gene that causes Sickle Cell Anemia.
通过进行一个简单的血液测试,一个人可以发现他们是否携带导致镰状细胞贫血的基因。
For example, Della will pass the Sickle Cell gene to his child.
例如,德拉会将镰状细胞基因遗传给他的孩子。
But imagine that his future wife does not carry the gene.
但是,想象一下他未来的妻子没有携带这种基因。
Then his child will only be a carrier of Sickle Cell.
然后他的孩子将只是镰状细胞的携带者。
The child would not have Sickle Cell Anemia.
这个孩子不会患有镰状细胞贫血症。
Now imagine that his future wife is a carrier of the sickle cell gene.
现在想象一下,他未来的妻子是镰状细胞基因的携带者。
She does not have Sickle Cell Anemia.
她没有镰状细胞贫血症。
But there is a good chance she will pass on the sickle cell gene.
但是她很有可能会遗传镰状细胞基因。
This also means that Della’s child has a very good chance of having Sickle Cell Anemia.
这也意味着德拉的孩子有很大的几率患上镰状细胞贫血症。